University Partners with DeCasanova to Find Life-Saving Matches
Written by Michael Rouleau
In its ongoing support for people with life-threatening blood diseases, Eastern Connecticut State University hosted its seventh marrow registry on Dec. 6. Organized by the men’s soccer team, 140 people were registered into the “Be The Match” database – the largest marrow registry in the world – bringing Eastern’s total to 1,650 registrants over the past five years.
The campus’s first marrow drive occurred in 2012, when student and soccer player Jon DeCasanova was diagnosed with aplastic anemia and lymphatic cancer. DeCasanova, a senior at the time, was given less than a one-percent chance of survival by some doctors.
“One of the treatments I needed was a marrow transplant,” said DeCasanova ’17, who graduated last spring and now works for the Rhode Island Blood Center. In his role as an assistant account executive, DeCasanova helps run Be The Match events throughout the region. “I was able to receive a stem cell transplant, which is a science that we’re supporting here today. It’s a science that saved my life.”
In the past five years, 20 Eastern registrants have made life-saving donations to people with rare blood diseases – a rate much greater than the national average of one in 300 being selected as a best possible donor, and one in 430 actually going through with the procedure.
People identified as matches have two options for donating. One method is via a peripheral blood stem cell (PBSC) donation, a nonsurgical procedure similar to giving blood. The other method is via a bone marrow donation, a surgical procedure in which bone marrow is extracted directly from the pelvic bone.
On the day of the event, members of the soccer team spread throughout campus, asking everyone they saw if they’re willing to help save a life. They even recruited the school’s mascot, Willy the Warrior. “Without the promotion of the team, there wouldn’t be as much success as there is,” said Greg DeVito, head coach, who reports the team volunteered approximately 70 hours in advance and during the event. “It’s an honor to see the team use their free time to help out a good cause.”
“Most current students weren’t here in 2012, so they don’t quite understand what it did to this campus,” said DeCasanova of his diagnosis, remembering the fear and outpouring of support across the Eastern community. “Most people don’t experience cancer at such a young age; I was only 20 years old at the time. None of us really understood what was going on.”
While the men’s soccer team spearheads the effort with Be The Match, several other student organizations help the event run smoothly. Among them this year were the Social Work Club and Love Your Melon, a nonprofit organization with a chapter on campus that is focused on pediatric cancer. Among other tasks, student volunteers prescreened interested donors for eligibility – using a questionnaire concerning general health – and administered mouth swabs.
“I don’t get emotional too much these days,” said DeCasanova, “but when it comes to this event and Eastern in general, and the family we have here, it’s amazing… the passion everyone still has for this event, and their continuing support, not only for me, but for all the patients out there that need matches.”
With DeCasanova’s story and Eastern’s support, the soccer team won the 2016 National Association of D3 Athletic Directors Community Engagement Award. In 2014, the University was honored with the National Marrow Donor Program/Be The Match Awareness Award. Representatives from the organization have commented that Eastern outperforms schools with much larger student populations.
“It’s not about me anymore. My life is saved,” concluded DeCasanova, adding that there are more than 70 diseases that are curable via marrow transplants. “It’s about all the other patients out there who are still looking for matches.”